"Lost together" describes not only Tamlin's beautiful immediate family but her massive extended family, the Lady Cilento Oncology Family.
Earlier I said it wasn’t my family’s fault, but it is.
I have no one else to blame but them for the fact that I laughed, felt loved and made it through 2017.
It has everything to do with them that I am here on a Wednesday night at 10:41 pm, hours away from a birthday I wasn’t sure I would get to celebrate. Without them, I wouldn’t be here 6 months and 4 days post a (successful) BMT.
I would be lost without them and I much rather we all be lost together.
Meet our kids and teens from diagnosis to today. Some are finished treatment, some are still in treatment for their first diagnosis, some are battling a second or third cancer (a side effect of treatment) and others are excruciatingly missing from our world.
Tamlin the hero of our story.
Meet Lara. Lara was diagnosed at 6 years old with Acute Lymphoblastic Leukaemia. She is now 7. Her treatment will continue until just after she turns 9.
Angus was dignosed 30th may 2017 with embroynal brain stem tumour. He did chemo radiation 2 brain surgeries and started a clinical trial. He died 25th march 2018 with 9 brain tumors and at least 15 in spine
13 months old at diagnosis
Diagnosed Very High Risk B-CELL Acute Lymphoblastic Leukaemia MLL rearrangement (Relapsed April 18 after BMT in February 18)
Currently in treatment
James in treatment for Ewing Sarcoma.
This is Nicholas when he went thru BMT for his secondary cancer acute myeloid leukaemia, he was 3 years old, he was originally diagnosed at 2. With acute lymphoblastic leukaemia, he is my chameleon kid, he was blonde than went orange and then black curls now he’s back to dark blonde. He’s now 6 years old and still undergoing blood tests every 2 months and being treated for Avascular necrosis due to all the steroid use during treatment.
Nicholas when he was diagnosed at 2 with acute lymphoblastic leukaemia.
Brodie - diagnosed on 07.07.16 aged 9 with standard risk B Cell Acute Lymphoblastic Leukaemia. Currently about to start his seventh cycle of maintenance. 14 months of treatment to go
Ollie was diagnosed with T-Cell Acute Lymphoblastic Leukaemia when he was two years old. He is now 6 and off treatment. He continues to have side effects from treatment.
Caitlin - diagnosed 23/11/2011 aged 8, with Stage 4 Neuroblastoma. Completed treatment December 2012 and has had no evidence of disease since then. Caitlin turns 15 next month
Jake Beckman, diagnosed 20 Jan 2009, aged 5, Stage 4 Neuroblastoma. Finished treatment May 2010. Recently turned 15😊💙🎗
Harrison 16 diagnosed August 2017 (then 15) with Burkitts Lymphoma. Currently post 2nd stem cell transplant (day +48) following refractory Burkitts after initial 6 rounds chemo. Has had both an auto and allo transplant, a bowel resection and a scary time in PICU on ventilator
Kierrah diagnosed with High Risk B-Cell Acute Lymphoblastic Leukaemia 14/7/2017. One and a half years to go.
Kacey - Diagnosed 30.03.17, 15 days after she turned 2 with ALL.
Still undergoing maintenance treatment (until July 2019).
Summer - diagnosed 05/09/2017 aged 2.5 years old with Stage 4 Neuroblastoma. She’s has done 6 rounds of chemotherapy, 10 hour surgery (lost a kidney), bmt, 20 rounds of radiation. Now she’s at next month immunotherapy. 💛
Alliarna Rose -diagnosed at 19 months old on 18th August 2017 with a rare t-cell lymphoblastic Leukemia with all cells mature throughout the blood and bone. Sadly lost her battle at 21 months old.
Matthew Wood a month before being diagnosed with Embryonal Rhabdomyosarcoma Stage 3 Group 3 ( tumour in head ) at age 12. This is Sept 17, he was very sick in October and tumour seen on scan on October 30th
Lachlan, 12 years old, Ewings Sarcoma.
Rhianna diagnosed 18th june 2015 aged 10
ALCL anaplastic large cell lymphoma .November will hopefully be 3 yrs in remission shes currently 13 yrs old